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Pachygyria Family Contacts Archives

June 22, 2010

Pachygyria Family Contacts

These are families who have a child with Pachygyria and are interested in connecting with other families.

**NOT for spam or solicitation. Please contact them if you have a child with Pachygyria only. Thank you. **

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Candice Lange for Corey - Birthday 1998 Georgia

Diagnosis: Multifocal epilepsy, mild hypotonic cerebral palsy, global developmental delays, exotropia strabismus, sensory integration dysfunction, dysthagia, mild (grade 4) posterior LIS or "paracentral pachygyria" or mild lissencephaly LIS1.

Candice@sophtware.com
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Trace Rich Birthday 12/08

Mom: Justina, Middleburg, Florida
http://www.tracesracewithliss.webs.com
justina_rich@yahoo.com
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Jake Hutchens Birthday 2/26/07

Diagnosis: lissencephaly, Pachygyria, Isolated Lissencephaly Sequence

Mom: Jaci Robinson-Hutchens
117 Edgewood Drive
Bedford, Indiana 47421

812-675-8837

http://jakehutchens.webs.com/
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Tabatha Huckeba for Travis - Birthday 2001

Please visit the link below:
1. Go to www.carepages.com
2. Click "Visit a CarePage"
3. Register (first-time users only)
4. After you've registered, enter the exact CarePage Name: TravisHuckebasCarePage (no spaces)

803-325-1644
2709 Harmony Rd., Rock Hill, SC 29730
thuckeba@aol.com

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Krista Karp for Jenna - Birthday 2004 Europe
(2009 - possible perisylvian syndrome instead)

doublemomATgmailDOTcom
(take out the AT and the DOT and put in @ and . )

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Amy Branaugh for Grant - Birthday 2009 Nebraska

amybranaugh@hotmail.com

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Bridget Lodge for Mary - Birthday 2002 California

2010 Diagnosis changed to Bilateral Perisylvian Polymicrogyria with Worster-Drought Syndrome. 2008 diagnosis Pachygyria

lodge.mark@hotmail.com

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Jessica Drake for Mason - Birthday 2008 New York

sissyca@yahoo.com

March 18, 2009

Links to Pachygyria Contacts

FireFly Health is devoted to serving people living with rare diseases. It is an online community and will match your medical input to the database for your unique group.

The Pachygyria community has 45 members as of 3/18/09.

http://www.fireflyhealth.org

About Pachygyria Family Contacts

This page contains an archive of all entries posted to Candice Lange in the Pachygyria Family Contacts category. They are listed from oldest to newest.

Pachygyria Family Stories is the next category.

Many more can be found on the main index page or by looking through the archives.

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