These are families who have a child with Pachygyria and are interested in connecting with other families.
**NOT for spam or solicitation. Please contact them if you have a child with Pachygyria only. Thank you. **
-----------------------------------------------------------
http://www.facebook.com/pages/Lissencephaly/154671384588245
Check out Jules page for Lissencephaly. A great way to connect with other parents, share photos, resources and stories.
FireFly Health is devoted to serving people living with rare diseases. It is an online community and will match your medical input to the database for your unique group.
The Pachygyria community has 45 members as of 3/18/09.
This page contains an archive of all entries posted to Candice Lange in the Pachygyria Family Contacts category. They are listed from oldest to newest.
Pachygyria Family Stories is the next category.
Many more can be found on the main index page or by looking through the archives.