Candice Lange

This article was found with Google Alerts using "Pachygyria" as my key word. It isn't written by a doctor but is a good general idea of what pachygyria is about and some of the treatments. It is not all inclusive as there are other issues depending on where the brain is affected. Some children also have sight and hearing issues.

(http://goarticles.com/article/Pachygyria-Treatment/4071694/ submitted 2011-01-25 by Kirthy Shetty, Ezine Articles Expert Author)

Pachygyria is a kind of pre-natal developmental disorder which affects a child and his spontaneous mental growth process. Predominantly, the condition is recognized in a child by the bulky convolutions of the cerebral cortex.

This discrepancy gets originated probably due to unusual and abnormal neuron migration in brain and nervous system development process. In case of pachygyria, the concerned gyri are found flat and broad in nature. However, the problem of pachygyria hardly affects complete brain and therefore, the symptoms often are found variable in nature. As the condition often affect partial functionality of mental development process as well as brain development process, it is called incomplete lissencephaly.

There are three common symptoms of pachygyria and these three common symptoms are delay in usual development, mental problems, and seizures. Apart from these three common issues some other associated problems are observed here like small head size, serious feeding issues, and inadequate muscle control of the baby. However almost all cases related to pachygyria is isolated in its own way and therefore the symptoms often vary from one child to another affected child.

Expression through art. Emily Bigioni, who has a brain condition called Pachygyria that prevents her from speaking or walking, works on a painting. Her creations will be exhibited March 2011 at the Varley Art Gallery in Markham.

Expression through art. Emily Bigioni, who has a brain condition that prevents her from speaking or walking, works on a painting. Her creations will be exhibited next week at the Varley Art Gallery in Markham.

Emily Bigioni cannot speak or walk, but she can paint.

The 15-year-old has a brain condition known as pachygyria, similar to cerebral palsy.
Her artwork will be on display March 7 to 13 at the Varley Art Gallery.

“It is extraordinary for her to do this. It is inspiring because it promotes the positive healing powers of the arts,” said Mary Pan, the event co-chairperson and a friend of the Bigioni family.

The opening reception is Monday at 7 p.m. and is open to the public.

Emily, a Brother Andre Catholic High School student, has been painting for eight years, much of the time at Holland Bloorview’s Centre for the Arts.

Holland Bloorview is Canada’s largest children’s rehabilitation hospital. It pioneers treatments, technologies, therapies and programs that give children with disabilities tools to fully participate in life.

People attending the exhibit will see a video of Emily and others painting in her Bloorview program. Emily’s exhibition is a precursor to upcoming programs at the Varley Art Gallery. Programs include Sensory Exploration in the Arts (a program for deaf-blind participants), as well as the Varley’s new art therapy for children with autism spectrum.

Several research articles listed that may pertain to mild pachygyria.

Abstract: Agyria-pachygyria and pachygyria in children. Contribution of imaging
J F Chateil, J M Girault, J M Pedespan, V Dousset, J F Castell, F Diard
Service d'imagerie pédiatrique, hôpital des Enfants-Pellegrin, Bordeaux, France.
Archives de pédiatrie : organe officiel de la Sociéte française de pédiatrie. 07/1994; 1(6):551-60.

http://www.researchgate.net/publication/15205588_Agyria-pachygyria_and_pachygyria_in_children._Contribution_of_imaging

BACKGROUND--Lissencephaly (agyria-pachygyria) is a defect in migration of cerebral neurons resulting in failure of cortical gyri to develop. Progress in imaging techniques improves its diagnosis.

www.mnsu.edu/comdis/kuster2/sptherapy.html

This is a HUGE list of special needs resources including interactive sites, specific disability assistance, generators, templates and much more.

Some good interactive games are Brain Pop, BBC, What's in the Bag, and Starfall.

If you have an ipad, or iphone, there is an app that you can download for $14.99 called WH questions.

FULL CIRCLE OF CARE CAREGIVER

www.fullcirclecare.org

What to Look for When Choosing an Assisted Living Facility

Atmosphere Yes No
Good location
Attractive appearance outside
Attractive appearance inside
Residents socialize with each other and appear happy and comfortable

Camp Dream exists to provide summer camps and recreational events for moderately to severly impacted special needs children and young adults. Our mission is to let these special children just be kids for a while, to let them explore their own capabilities and experience new adventures. If you are a parent of a special needs child we encourage you to apply to have your child come to camp. If you are someone who cares about special needs kids, come join us in showing these kids some unconditional love.

The camp is an overnight camp (4 days) during the summer. 2011 there are
holding three sessions.

June 18-21
June 23-26
July 28-31

The camp is located on the grounds of the Roosevelt Institute for
Rehabilitation in Warm Springs GA. It's about 30 minutes north of Columbus.

Contacts:

Beverly Taylor (Camp Driector) beverlytaylor@campdreamga.org

Clete Taylor (Marketing) cletetaylor@campdreamga.org

678-672-8700

Applications and Info: www.campdreamga.org
Facebook: http://www.facebook.com/CampDream

Day camps, overnight camps, leadership training and retreats.

See the website for all the details, registration and locations.

www.glisson.org