These are families who have a child with Pachygyria and are interested in connecting with other families.
**NOT for spam or solicitation. Please contact them if you have a child with Pachygyria only. Thank you. **
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Candice Lange for Corey - Birthday 1998 - Georgia
Diagnosis: Multifocal epilepsy, mild hypotonic cerebral palsy, global developmental delays and at 11 yrs became mild mental retardation, exotropia strabismus, sensory integration dysfunction, dysthagia, mild (grade 4) posterior LIS or "paracentral pachygyria" or mild lissencephaly LIS1.
Candice@sophtware.com
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Kim and Mike Lange for Cadie (Cadence) - Birthday 1997 - Oregon
Diagnosis: Hypotonic Cerebral Palsy until diagnosed at 6yr with Pachygyria in her frontal and parietal lobes. Infantile spasms but none since toddler years.
langem2001@yahoo.com
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Nicholas and Samantha Isaacson for Hunter - Birthday 02/04/2010 - Missouri
Diagnosis: Pachygyria, Microcephaly and seizures that are hard to control.
10/2010 changed to - Microcephaly with a simplified pattern, Cortical Eye impairment, infantile spasms, seizures & spots that he has all over his body.
Visit Hunter’s website in two easy ways:
1. Visit the CaringBridge website by clicking the link below.
http://www.caringbridge.org/visit/hunterisaacson
2. Enter the website name, hunterisaacson, at www.CaringBridge.org.
or:
http://hunterisaacsonandfamily.blogspot.com/
Contact: Samantha Isaacson
E-mail: sam.isaacson@stlcommunications.net
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Justina for Trace Rich - Birthday 12/08 - Middleburg, Florida
http://www.tracesracewithliss.webs.com
justina_rich@yahoo.com
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Jaci Robinson-Hutchens for Jake Hutchens - Birthday 2/26/07 - Indiana
Diagnosis: Lissencephaly, Pachygyria, Isolated Lissencephaly Sequence
117 Edgewood Drive
Bedford, Indiana 47421
812-675-8837
http://jakehutchens.webs.com/
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Tabatha Huckeba for Travis - Birthday 2001 - S. Carolina
Please visit the link below:
1. Go to www.carepages.com
2. Click "Visit a CarePage"
3. Register (first-time users only)
4. After you've registered, enter the exact CarePage Name: TravisHuckebasCarePage (no spaces)
803-325-1644
2709 Harmony Rd., Rock Hill, SC 29730
thuckeba@aol.com
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Krista Karp for Jenna - Birthday 2004 - Europe
(2009 - possible perisylvian syndrome instead)
doublemomATgmailDOTcom
(take out the AT and the DOT and put in @ and . )
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Amy Branaugh for Grant - Birthday 2009 - Nebraska
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Bridget Lodge for Mary - Birthday 2002 - California
2010 Diagnosis changed to Bilateral Perisylvian Polymicrogyria with Worster-Drought Syndrome. 2008 diagnosis Pachygyria
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Jessica Drake for Mason - Birthday 2008 - New York